Sunday, April 22, 2012

Support Networks


  • ·         http://www.aldsupport.org is a blog-type website where families with loved ones affected by ALD can have a support system with others in a similar situation. Here, people can hold discussions about supporting one another, find updates on research of the disease, and write about their personal experiences.
  • ·         http://www.aldfoundation.org/ is a website that provides educational material about ALD, allows for donations to be made to fund research for finding a cure, and lets users post blogs and memorials.
  • ·         http://www.myelin.org/ provides the encouraging story of the Odone family who created Lorenzo’s Oil, and what is being done to find a cure for ALD.



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